No I don’t. It’s hard to explain to someone when they have no clue. It’s a daily struggle feeling sick on the inside while you look fine on the outside. Some days I am perfectly fine while others it's a struggle to even get out of bed. It's hard to understand what you can't see. There is nothing more frustrating to a person who suffers from an "invisible disease" than your friends/family not believing or understanding that you are actually struggling. Check out this article and the spoon theory...may put some perspective on living with Lupus.
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LUPUS
Joint and muscle pain: Most people with lupus have joint pain (arthritis) at some time. About 70% of people with lupus report that joint and muscle pain was their first sign of the disease. Joints may be red and warm, and may swell. Morning stiffness may also be felt. Lupus arthritis often occurs on both sides of the body at the same time, particularly in the wrists, small joints of the hands, elbows, knees, and ankles.
Skin problems: Most people with lupus develop skin rashes. These rashes are often an important clue to the diagnosis. In addition to the butterfly rash over the cheeks and bridge of the nose, other common skin symptoms include skin sores or flaky red spots on the arms, hands, face, neck, or back; mouth or lip sores; and a scaly, red or purple raised rash on the face, neck, scalp, ears, arms, and chest.
Sensitivity to light: Exposure to ultraviolet light (such as sunlight or tanning parlors) typically worsens the skin rash and can trigger lupus flares. Sensitivity to light affects many of those with lupus, with fair-skinned people with lupus tending to be more sensitive.
Nervous system symptoms: Some people with lupus develop nervous system problems, most commonly headaches. It is not clear whether these are from the lupus itself or whether they are related to the general stress and fatigue of having a chronic illness. More severe symptoms-such as difficulty with memory or concentration, or numbness or weakness of the arms or legs-are not common.
Heart problems: People with lupus may develop inflammation of the heart sac (pericarditis), which may cause severe, sudden pain in the center of the left side of the chest that may spread to the neck, back, shoulders, or arms.
Lung problems: People with lupus may develop inflammation of the sac around the lungs (pleurisy), which can cause a stabbing chest pain and coughing.
Mental health problems: People with lupus may develop problems such as anxiety and depression. Such problems can be caused by lupus, the medicines used to treat it, or the stress of coping with chronic illness.
Fever : Most people with lupus will sometimes have a low-grade fever related to the disease. Fever is sometimes a first sign of the disease.
Changes in weight: Many people with lupus lose weight when their disease is active (flaring).
Hair loss : People with lupus may experience periods of hair loss, either in patches or spread evenly over the head. This hair loss is usually not permanent.
Swollen glands : Many people with lupus eventually develop swollen lymph glands during a flare.
Raynaud's phenomenon: Some people with lupus have Raynaud's phenomenon. It affects the small vessels that supply blood to the skin and the soft tissues under the skin of the fingers and toes, causing them to turn white and/or blue or red. The skin affected will feel numb, tingly, and cold to the touch.
Inflammation of blood vessels in the skin (cutaneous vasculitis): Inflammation or bleeding from the blood vessels can lead to small or large blue spots or small reddish spots on the skin or nail beds.
Swelling of the hands and feet: Some people with lupus have kidney problems, which can prevent extra fluids from being removed from the body tissues. As fluid collects, the hands and feet may swell.
Anemia : Anemia is a decrease in the amount of the oxygen-carrying substance (hemoglobin) found in red blood cells. Many people with an ongoing disease such as lupus develop anemia because they don't have enough red blood cells.
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